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Cyrilla Baer
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"Hey, I'm Flexible!"

Stories from an actress
with an Invisible Disability

Ehlers-Danos Syndrome - Hypermobility Type

www.EDNF.org

Telling my agent...

5/15/2013

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Having an agent in NYC is a big deal. It's hard to get one, hard to keep one, and hard to work much without one. Even tho I haven't really been able to work, I am loathe to give up having an agent. With my agent, I don't have to put my contact info out there - his phone number becomes my phone number. It provides both a feeling of safety and accomplishment. 

But an agent can only represent you if they know what is going on with you. And this isn't something I can hide anymore. I don't get many people asking to see me anymore - my popularity rush after Adding Machine lasted about 2 years, then it was over - but I do still get requests to audition for things every now and then. Most are readings or workshops, which I LOVE to do. Last year I had a request to audition for the role of the Grande Damme in the Halloween production of SLEEP NO MORE - it KILLED me to turn that one down, but I saw the hours and knew I couldn't physically handle it...

I really should have informed my agent about my condition before I released the blog. But I saw that the blog was turning up in searches even with the link on my website hidden, so I knew I needed to acknowledge it. And that has forced me to send an email to my agent. And god, was that hard. I'm actually nauseated from the anxiety.

I don't expect them to market me anymore - I just hope they'll keep me listed as a client so people can reach me. But it is absolutely understandable if they don't. Agents are about business - they have to be. We'll see what they feel they can do about me.

UPDATE! August 14, 2013
I got this in my email today: 
"Cyrilla, my apologies, I did read this back in May but neglected to respond to you. Of course I will still represent you in any way possible. I hope you're doing okay and please, stay in touch and let me know what's going on. xxoo,Gary."
I'm a lucky - and grateful - girl.

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    Author: 
    Cyrilla Baer

    I was diagnosed in February of 2012 with 
    EDS - HT, which is a genetic connective tissue disorder (it's why I can bend my elbows backwards!) I've kept it under wraps, but I'm out of the medical closet now.

    EDS is caused by the body's inability to make collagen correctly. Collagen is in all connective tissue and connective tissue is part of every organ and vessel in your body. While your tendons and ligaments are like rubber bands, mine are more like taffy.

    For more info, please see my post "30 Things You May Not Know About My Invisible Illness", or visit EDNF.org or CEDSA.org. And tho it's a little dated (we try not to call it Joint Hypermobility Syndrome anymore), this is a description by a doctor putting it in  layman's terms.

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